Amanda Greene became an engaged healthcare activist after living with Lupus (and other autoimmune conditions: fibromyalgia, osteoarthritis and Rheumatoid Arthritis) for decades. Her struggles made her advocate for herself; now she also advocates for others.
In 2018, Amanda shared her patient experience at HIMSS in a session about the impact of Health Technology on her healthcare. This Spring, she advocated for Lupus on Capitol Hill, later in March, Amanda was on the patient panel at the Virtual Medicine conference sharing her perspective on how VR (virtual reality) can help people living with chronic pain. As a woman living with chronic pain, Amanda is the current International Pain Foundation’s “Face of Osteoarthritis” and recently the “Face of Lupus” raises chronic pain awareness for the organization on behalf of chronic pain patients. As she says, “connecting and collaborating are the keys to transforming healthcare”. She was the opening keynote speaker at the expo.Health conference. As the year wraps up in 2018 Amanda has been honored with winning the WEGO Health Awards “2018 Healthcare Collaborator: Patient” and the International Pain Foundation’s “2018 Patient Advocacy Hero” awards.
As @LAlupusLady on Twitter she openly shares her perspectives of the patient journey. Her story “Living Well with Lupus” is a chapter in Jan Oldenburg’s newest book “Participatory Healthcare.”
Amanda is more than a “Lupus advocate”, she is a dedicated “Healthcare Activist” and a well-spoken patient who has been interviewed for the Los Angeles Times and KCBS LA on health topics and the British Medical Journal published her patient commentary on “The power of Social Media.”
Amanda is a frequent contributor to the online healthcare conversation and actively shares her passions and patient experience at conferences and seminars. As an accomplished brand ambassador with particular experience in healthcare, fashion, entertainment and media industries Amanda has organized publicity events, from live launch parties to and online Twitter Chats for nationally distributed brands and campaigns. Amanda has developed successful campaigns and events for diverse clients including: CNN, Warner Brothers Television, the Mill Valley Film Festival, Bill Graham Productions and Grateful Dead Productions. Connecting with Social Media is a natural extension of Amanda’s warm personality. Amanda is a proud advocate for the Lupus and Allied Diseases Association, the Lupus Foundation of America and the Lupus Research Alliance. While supporting the Born This Way Foundation, Amanda was captured for a few seconds on film and if you don’t blink you can witness an “extra-ordinary” moment in “A Star Is Born” as she portrays an excited fan.